The Muscular Dystrophy Association, often known simply as MDA, has been a symbol of hope and progress for families affected by neuromuscular diseases since its founding in 1950. For decades, the organization has been committed to funding medical research, providing comprehensive care, and raising awareness about a wide range of muscular disorders including muscular dystrophy, ALS, and spinal muscular atrophy.
The Legacy and Revival of the MDA Telethon
One of the most recognizable traditions of the MDA was its annual Labor Day telethon For many years, this event was hosted by the legendary comedian and actor Jerry Lewis. His deep personal commitment to the cause helped raise billions of dollars for the organization and brought national attention to the challenges faced by individuals living with neuromuscular diseases. Jerry Lewis became the face of the MDA telethon, and for generations, families across the United States tuned in to support the cause and donate to the mission.
After some time away from the spotlight, the MDA telethon made a powerful return in 2020 with a new host, Kevin Hart. Known for his charisma and energy, Hart stepped into the role with passion and purpose. The modern version of the telethon, known as the “MDA Kevin Hart Kids Telethon,” was held as a virtual event, reflecting the digital age and embracing new technologies. While honoring the legacy left by Jerry Lewis, Hart brought a fresh and youthful energy that helped attract new supporters and broaden the organization’s reach.
This revival of the telethon marked more than just a change in host. It symbolized a new chapter for the MDA, one that continues to build on its historic mission while adapting to meet the needs of today’s world. The organization has expanded its focus and now funds research across numerous neuromuscular disorders, not just muscular dystrophy. This includes support for conditions like ALS, spinal muscular atrophy, facioscapulohumeral dystrophy, and limb girdle muscular dystrophy.
MDA’s Mission: Research, Care, and Advocacy
Research remains at the core of what the MDA does. The organization has invested more than one billion dollars in research over the decades. These investments have led to major medical breakthroughs, including gene therapies and FDA approved treatments that are changing the lives of patients. For example, the development of gene therapy for Duchenne muscular dystrophy and treatment options for SMA are just two examples of how MDA funded research is making a tangible difference.
In addition to research, the MDA also provides critical care through its nationwide network of Care Centers. These facilities offer multidisciplinary services that help individuals manage their conditions and maintain quality of life. The Care Centers connect families with neurologists, therapists, and specialists who work together to provide the best care possible.
Advocacy is another key part of the MDA’s mission. The organization has played a strong role in pushing for policy changes, securing funding for research, and expanding access to care. Its advocacy efforts have also contributed to increased inclusion of neuromuscular conditions in public health programs and newborn screenings.
The return of the telethon with Kevin Hart at the helm represents more than nostalgia. It is a celebration of MDA’s evolving mission and a reminder that community support and awareness remain essential. With its continued focus on research, care, and advocacy, the MDA is determined to build a world where muscular disorders are no longer a barrier to living a full life.
As the MDA moves forward, it carries with it the strength of its history and the momentum of new leadership. The fight against neuromuscular diseases is ongoing, but thanks to the work of the MDA and its supporters, real progress is being made every day. You can donate here